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Our daughter was born with a heart defect at the John Radcliffe hospital. She was transffered to Great Ormond Street Hospital a few days later where she was meant to get heart surgery. On the day of the operation, it was cancelled and more tests were to be taken. Lacey-mae was diagnosed with Bilary Atresia, a condition to do with the liver. This required a liver transplant but this could not be done because her heart was not strong enough. The heart surgery couldnt happen because her liver wasnt strong enough, We had to take the decision to turn the machine off that was keeping her alive. 17 long hours after we turned it off, Lacey passed away in her mothers arms. 

GOSH were amazing they did everything they could to help her and the care they gave us was amazing too. I would like to give something back to them as they did so much for my partner and I.