Story
Thanks for taking the time to visit my JustGiving page.
Hi! I’m Grace, I am 15 years old and I will be trying to walk half a mile everyday from August 1st 2021, until my 16th birthday (Nov.29 ‘21) for the ME Association. Myalgic Encephalomyelitis (ME/CFS) is a neurological disease affecting adults and young people from all socio-economic and ethnic backgrounds. In some, leading to long term disability. For many, ME is a complex post-viral fatigue syndrome affecting many bodily functions that can occur at any time. I have been living with this condition, alongside POTS-another chronic illness, for over 2 years (but only recently been diagnosed). Unfortunately it has severely impacted my life and often leaves me bed ridden. I’m unable to do the things I used to be able to do and currently have to use a wheelchair to get around. In addition, it has affected my heart and I have to take beta blockers to be able to function at all. Since developing ME my life has changed an awful lot and is unrecognisable from how it once was. I know, ultimately, I will get better but no doctor can predict when this will be… but it is likely to be months/years and sadly, there is no guarantee I will ever return to the way I lived before. I have set myself this goal of walking to try and raise money and awareness. Although half a mile may not sound like a lot, it will definitely be a huge challenge for me! It would be amazing if you could donate but if you’re unable - just reading this far is equally as amazing! Thank you so much for all the support I’ve been given to date. It means everything to me. Big hugs Xxxx