New Forest Half Marathon inspired by my Nephew Freddie

Glen Marshall is raising money for Nerve Tumours UK

Participants: Rozzie Batchelor and Jamie Hammick

£968
raised of £800 target
Donations cannot currently be made to this page

The New Forest Half Marathon · 13 August 2019

Nerve Tumours UK

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RCN 1078790; SC045051
We provide specialist advice & support to reduce the impact of NF.

Story

My nephew Freddie lives with this condition called Neurofibromatoses, a lifelong complex disorder that can never be changed. Due to the condition, Freddie has weakening in his muscles which affect his day to day life. He has benign tumours in his brain and spine which affect his walking, coordination and behaviour. He has learning difficulties and hypersensitivity to sounds and textures. He also has issues with his growth, suffers headaches, nose bleeds and has cafe au lait spots all over his body. All of this sadly was not inherited, but a fault in his genes.

In the next 2 weeks alone, Freddie will have to attend 8 hospital appointments and yet through all this, he would never show that he suffers or that he is unhappy. He is constantly playing, smiling and laughing. Being our personal comedian, making sure he always picks up his uncle's favourite treats when he visits the shops and always being kind and considerate with others.

Nerve Tumours UK are doing their best to tackle this condition and it would be great if you could all donate to support this cause and I will do my best to run the Half Marathon and not collapse in the process :-D

Thanks All x 


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Donation summary

Total
£967.57
+ £148.75 Gift Aid
Online
£967.57
Offline
£0.00

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