Henry (my nephew) was born with a rare abnormality of his airway called Long Segmented Tracheal Stenosis. This meant his airway was only 1.5mm wide when it should have been 6-8mm. This resulted in Henry struggling to breathe. To put that into perspective, it’s like an adult sprinting 100 metres and then breathing through a straw to catch their breath.
There are only two places in the world that can correct this abnormality and GOSH is one of them. 80% of the worlds cases of Long Segmented Tracheal Stenosis have their corrective operations at GOSH - every year; approximately 12-14 babies.

Henry not only had this life threatening condition but he also underwent surgery to have his left pulmonary artery resited as he was born with it wrapped around his already narrowed wind-pipe, which was strangling his airway further.

Henry’s open heart surgery repaired the conditions above, along with a few other issues relating to his heart and blood flow to his lung. He is now on the mend! He is still in intensive care but is making small steps towards going home each day and giving smiles when he can.

Without GOSH’s specialist traechial team, Henry wouldn’t be with us now. Having given him a very complicated, lengthy surgery he now has the very best chance at a normal life. Ben and Shevonne have been provided with excellent support, care and service. Their accommodation provided to them whilst in London has been extremely useful - only 30 seconds from the hospital front door. GOSH needs £200m per year in additional funding just to maintain its existing services so please give what you can to encourage my training and make sure it’s vital work for children continues!

Thank you in advance.

Tom

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