Giles Desforges

Giles Desforges's Fundraising Page

Fundraising for Wolf Hirschhorn Syndrome Trust
£1,417
raised of £1,000 target
Donations cannot currently be made to this page
Event: London Triathlon 2008, on 9 August 2008
Wolf Hirschhorn Syndrome Trust

Verified by JustGiving

RCN 1038219
We provide information and support families to improve the lives of affected children

Story

UPDATE

Well I have just got home and am about to crack open a beer.  My unofficial time was 2:27:45 so I beat 2:30.  It was incredibly tough with the wind a real problem, and I have to admit that I was feeling the pain on the run and was pretty close to stopping, however I kept turning over in mind all the donations that everyone made - so I kept going.

Thanks again for all your generosity.

Best

Giles

Last year I took up triathlon, partly to combat middle age spread, but also to support the Wolf Hirschhorn Syndrome Trust, and raised a fantastic amount of money to help families impacted by this rare genetic syndrome.

Maddie, my goddaughter, who brightened our lives for too short a time, was born with Wolf Hirschhorn Syndrome in 1999.  During the time she was alive the Trust provided invaluable support to her parents. The vital work they provide continues today, offering information and support to families all over the UK. 

This year I am taking on the world's largest triathlon putting myself through the pain and embarrassment of swimming in the docks then running and cycling around London in my lycra.  And I'm trying to do in under 2:30 hours.

So please sponsor me - it really helps!

Thanks

Giles 

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About the charity

Wolf Hirschhorn Syndrome Trust

Verified by JustGiving

RCN 1038219
The Wolf Hirschhorn Syndrome Trust supports families affected by this rare genetic disorder by providing information in the form of newsletters, organising biennial national meetings, promoting awareness, funding research and grants, and forming links with support groups around the world.

Donation summary

Total raised
£1,416.50
+ £344.10 Gift Aid
Online donations
£1,301.50
Offline donations
£115.00

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