Willow is deaf, non-verbal and visually impaired. She has no swallow so is also 100% tube fed a blended diet. She is also one of the most amazing little girls you will ever encounter. Her eyes tell you she understands more than you think and she has no problem communicating her basic needs to those who know her well.

We’ve been told that she will need reconstructive hip surgery in a year’s time, possibly sooner as due to her high tone and spasms, her left hip is not forming correctly. Our only hope to avoid the surgery is to get her standing more, to get weight through the hip joint and socket and hope that helps. It’s not a given but the decision will be made in 6 months time when we next visit her specialist orthopedic surgeon.

Here begins operation Get Willow Standing! We want to employ a private physio to fill the gap between NHS physiotherapy visits and we are possibly looking at buying a different standing frame if this can’t be provided and also visiting Brainwave.

Should we exceed the target amount or if we do not raise enough funds, or if they cannot be used for any other reason, the funds raised will go to the general funds of Tree of Hope to assist other sick children.

Thank you very much,