Andrew Cunis

Gerry And The Notes

Fundraising for Prader-Willi Syndrome Association Uk
£1,523
raised of £500 target
Donations cannot currently be made to this page
Gig, 25 May 2012

Story

Come and join Gerry And The Notes at The Earl Spencer Pub to raise money and awareness for Prader-Willi Syndrome (PWS). The event is being held in aid of Tom, 2½ years old born with PWS, who is a nephew of one of the singers in the band. The evening will be filled with a medley of contemporary tunes performed by Gerry and The Notes, a raffle, and a few other fund raising games. Tickets for the evening cost £5 - thank you for buying your ticket via donation on Justgiving. This charity receives no government funding and relies ENTIRELY on personal donations.

What is PWS? - PWS is a rare, complex genetic disorder, which is present from birth and continues throughout life. In 95% of cases it is not hereditary and can thus occur in any family. People with PWS are challenged by an untreatable, insatiable appetite resulting in almost constant feelings of hunger, together with immature physical and emotional development. Most have learning disabilities. The name of the syndrome is derived from the names of the two doctors who first described the pattern of characteristics associated with PWS in 1965.


 

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About the charity

Prader-Willi Syndrome is a rare genetic abnormality causing physical and mental disabilities throughout life. PWSA UK is the only UK organisation dedicated to supporting those with PWS, their families/carers and the professionals involved with them. Please do visit at www.pwsa.co.uk.

Donation summary

Total raised
£1,523.00
+ £355.75 Gift Aid
Online donations
£1,523.00
Offline donations
£0.00

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