Oscar and Sebastian Spink are nine-year-old twins from Lymm in Cheshire where they live with older sister Scarlett, mum and dad Kerry and Grant and their two dogs Bertie and Pip. They were officially diagnosed in July 2019 with Facioscapulohumeral muscular dystrophy (FSHD). While dealing with this diagnosis has been a shock, the family are keeping a positive outlook and have decided to help fund research into the boys condition by setting up a Family Fund and reaching out to others to get involved along the way too.