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Thanks for taking the time to visit my JustGiving page. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.
Unfortunately I lost not one but 2 of my brothers to this disease. I was of a young age so I never really understood at the time, but now I'm older I really want to do something positive!
There is still no cure for Niemann-pick's, yet. In some cases, depending on what type you have, there is no effective treatment.
I REALLY would feel some sense of achievement raising money for this charity as it is so personal to me. It's awful losing people in your life but if we all come together, we can hopefully with enough money and research eventually fund and find 1)effective treatment 2) a cure.