After a year of no fundraising for Action Duchenne, what better way to get back in the saddle then a 10k mud run & assault course!

As most people visiting this page will know, my nephew Oliver was diagnosed with Duchenne muscular dystrophy back in 2016/17, and the support given to him, my sister and the whole family by Action Duchenne has been fantastic. And as a family we want to try and give back as much as we can; previous fundraising feats include abseiling down the Olympic Tower, shark diving & walking 26 miles along Hadrians Wall. 

Duchenne muscular dystrophy is a rare genetic condition caused by mutations in the dystrophin gene, which prevent production of a vital muscle protein called dystrophin.

The lack of dystrophin makes muscles more susceptible to damage and leads to muscle wasting over time. People living with Duchenne muscular dystrophy experience progressive muscle weakness and typically need to use a powered wheelchair from their early teens.

The heart and breathing muscles are eventually affected and most will require a ventilator in their twenties; life expectancy is around 30 years but has improved with palliative care developments.

There is no cure. But Action Duchenne are working tirelessly to support those affected by DMD, and also to  support clinical trials for DMD treatments.

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