Story
So on Thursday 15th April I will be attempting 1000 burpees trying to raise money for an amazing little boy Dawson.
This is a great way for all my clients to get there own back for all the hard work I put them through as well as making money for a very worthy cause. If I manage to hit my target I will do an extra burpee for every £1 over said target. So for example if I hit £501 that’s 1001, £502 that’s 1002, £503 that’s 1003 and so on and so on.
Dawson was born at 32 weeks by emergency C-Section from the moment he was born he wanted to surprise us all. Breathing independently, crying straight away and then managing to bottle/breast feed after only 9 days losing his feeding tube.
Dawson was a quiet chilled out baby with 2 boisterous brothers Reuben 9 and Aulay 7. Everything seemed to be perfect and our family was finally complete and ready for some new adventures.
Dawson had some nasty ear infections from about 6 months which the Doctors believed was his reason for poor balance when sitting. After a number of visits to the doctors that it might be something else he was referred to a consultant at the hospital.
Then out world came crashing down................
The consultant advised that Dawson has Dystonic Spastic Diaplegic
Cerebral Palsy. Another appointment at 2 years old confirmed this.
Since then, Dawson has been attending weekly physio alongside daily physio at home. Pre COVID he was attending weekly Hydrotherapy. He works so hard spurred on by his brothers and his best friend at nursery Emmi.
Although not quite the adventure we planned Dawson has now a long road to being totally independent, walking unaided and being able to move more freely. This is no longer a dream as he is a perfect candidate for SDR surgery.
SDR is not a cure for Cerebral Palsy but the operation intends to improve quality of life by reducing the muscle stiffness. The procedure is irreversible so the changes cannot be undone. But, the procedures effectiveness at reducing spasticity and improving quality of life has been demonstrated many times. The four to five hour procedure involves;
An incision made into the upper lumbar spine.
An ultrasound prod used to identify the lower end of the spinal cord.
Under the operating microscope, the membrane covering the spinal cord is
opened and the lower end of the cord, with the sensory roots entering it, is
identified.
Each of the sensory nerve roots is then subdivided into four or five
rootlets.
Each rootlet is stimulated to identify the ones that contribute most to
the spasticity.
These rootlets are then divided. The process is repeated for all the
other nerve roots on both sides, aiming to divide 50 to 70 per cent of the
sensory roots.
At the end of the procedure, the membrane covering the spinal cord is
closed again.
As you can imagine this procedure is very expensive.
So every little helps!