Hello, 

At the start of April 2019, a very close friend of mine was diagnosed with Thrombotic Thrombocytopenic Purpura (TTP).

TTP is an extremely rare blood disorder, so rare in fact that it only affects between 6-10 people in every 1 million.

Because its such a rare disorder, there is hardly any funding to help research and combat TTP. With accurate diagnosis and prompt treatment, The current survival rate is approximately only 80%.

TTP is lifelong condition and will require regular treatment.

For anyone to hear this news it would obviously be devastating to them and for my friend who is otherwise a healthy and active person, and is actually a nurse herself, Having spent years helping people in their time of need, the harsh irony of this diagnosis is such a cruel blow.

My friend is currently in the ICU at Bristol BRI and requires blood transfusions a minimum of 5 hours per day. 

I knew nothing of this condition before this week and I'm sure not many of you reading this have heard of it either. Which shows how rare it is and highlights the importance of raising funds & awareness.

I'm planning to run the Bristol 10k on Sunday 5th May 2019 to help raise money and also awareness for this ultra rare condition.

I ask for you to donate whatever you can so we can reach our target of £500 to go to University College London Hospitals Charity UK, so they have some funds to help with their research into TTP.

Please share this where you can, so we can make more people aware.

I want to thank you for taking the time out to read this and any money you can spare will be greatly appreciated.

search ttpnetwork.org.uk for more information

Thank you,

Gary