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#FunFeet4FOP is back!
Why a £2,304 target? ... Our #FunFeet4FOP campaign coincides with FOP Awareness Day, which takes place every year on 23rd April. People wear wacky shoes, snazzy socks, paint their feet and toes crazy colours etc., then post photos of their fun feet online, with the hashtag, to help raise awareness of FOP.
What is FOP?
FOP (Fibrodysplasia Ossificans Progressiva) is one of the rarest, most debilitating conditions known to medicine. Muscles, tendons & ligaments turn to bone imprisoning the body in a second skeleton. There’s currently no effective treatment, or a cure, and the average life expectancy is only 40-years-old. Watch our video, narrated by Stephen Fry, for more info: https://www.youtube.com/watch?v=jrlSA9llvsg
Why feet?
An important early indication of FOP is malformed big toes at birth. This classic sign is often not recognised, due to lack of awareness. Misdiagnosis is common, which in turn can result in traumatic, unnecessary treatment, such as biopsies, surgery, and chemotherapy. These treatments aggravate FOP symptoms and cause the progression to accelerate.
How you can help:
- Make a blog post for us and share on your social media platforms
- Raise awareness - wear fun feet to work on 23rd April
- Do more. Donate. Help us fundraise.
Wear fun feet to work for a small donation; Hold a #FunFeet4FOP event; Bake a cake
We're so lucky to have the following companies so far supporting us this year:
- Skillsarena, the Chelmsford-based online talent management solutions provider ~ https://skillsarena.com
- Wiley Publishers, a global publishing company that specialises in academic publishing ~ https://www.wiley.com/en-gb