FOP Friends

#FunFeet4FOP 2019

Fundraising for FOP Friends
£511
raised of £2,304 target
Donations cannot currently be made to this page
#FunFeet4FOP 2019, 23 April 2019
FOP Friends

Verified by JustGiving

RCN 1147704
We are raising money to fund research into FOP

Story

#FunFeet4FOP is back! 

Why a £2,304 target? ... Our #FunFeet4FOP campaign coincides with FOP Awareness Day, which takes place every year on 23rd April. People wear wacky shoes, snazzy socks, paint their feet and toes crazy colours etc., then post photos of their fun feet online, with the hashtag, to help raise awareness of FOP.


What is FOP?
FOP (Fibrodysplasia Ossificans Progressiva) is one of the rarest, most debilitating conditions known to medicine. Muscles, tendons & ligaments turn to bone imprisoning the body in a second skeleton. There’s currently no effective treatment, or a cure, and the average life expectancy is only 40-years-old. Watch our video, narrated by Stephen Fry, for more info: https://www.youtube.com/watch?v=jrlSA9llvsg

Why feet?
An important early indication of FOP is malformed big toes at birth. This classic sign is often not recognised, due to lack of awareness. Misdiagnosis is common, which in turn can result in traumatic, unnecessary treatment, such as biopsies, surgery, and chemotherapy. These treatments aggravate FOP symptoms and cause the progression to accelerate.


How you can help:

  1. Make a blog post for us and share on your social media platforms
  2. Raise awareness - wear fun feet to work on 23rd April
  3. Do more. Donate. Help us fundraise. 
    Wear fun feet to work for a small donation; Hold a #FunFeet4FOP event; Bake a cake

We're so lucky to have the following companies so far supporting us this year:

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About the charity

FOP Friends

Verified by JustGiving

RCN 1147704
FOP Friends was established to raise money & awareness for the rare genetic condition fibrodysplasia ossificans progressiva. FOP is one of the rarest and most disabling genetic conditions known to medicine. A cure is near, but we need to keep research funded to perfect it in time for those with FOP.

Donation summary

Total raised
£510.51
+ £115.00 Gift Aid
Online donations
£510.51
Offline donations
£0.00

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