Story
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On 19th February 2014 I was given the news that no Mummy ever wants to hear - "your son has a medical condition that has no cure". My heart was broken into a million pieces.
My baby, my prince, my very much wanted little boy has Duchenne muscular dystrophy - a condition which will waste away every single muscle in his body, finishing with his heart and lungs - taking him from me before he becomes a man. I will have say goodbye to my son. It's the unimaginable, yet for me, a reality that I live with day in day out.
For me, I will never accept that there's 'nothing I can do'. I am Fraser's Mummy, his protector and I must make this better in any way that I can. Fraser will soon be 4 years old but has never been able to stand independently or walk. I have come to terms with the fact that my son will always have a wheelchair but I must make sure he has the best possible life from this wheelchair. So...
I am fundraising to give the money to the worlds best scientists who can give my son, and all others living around the world like him, the best lives possible. To try and slow down the progression of this evil disease so these children can grow up. On 3rd June I am climbing 9 miles up Snowdon carrying Fraser every step of the way on my back in a special rucksack. My two closest friends, Jamie and Gemma deserve a special thank you for agreeing to come along with me and support me on the way up!
I'm a Mummy and I am desperate. Duchenne affects 1 in 3,600 male births and 1 in 50,000,000 females and it can happen to anyone. Any race, any religion, any geographic location. It could have been your son or daughter. But it was mine.
Please help me to save my sons life. Please sponsor me.
Shelley X