Story
As most of you will know I am about as far from been a Triathlete as it comes! An Olympic distance Triathlon is..... 1.5k open water swim, 40k and a 10k run for good measure.
This is going to be a massive challenge and I will be very grateful of any donation you make to the foundation.
You will make a difference with your donation!
Skye Wellesley Foundation
Skye Wellesley was diagnosed with Rett Syndrome when she was just a small young girl, yet this debilitating syndrome is widely unknown. Very few are aware of the syndrome yet it affects 1 in 15,000 young girls and consequently several thousand families in the UK today. The Skye Wellesley Foundation aims to provide funding for research in order to understand not only how but why the syndrome exists, so a cure or solution can be found.
Rett Syndrome is caused by a sporadic genetic mutation for reasons yet unknown. It affects 1 in 15,000 girls around the world, drastically slowing neuro-development leaving most unable to speak and only half able to walk. As well as the physical capacities, girls suffering from Rett Syndrome are also prone to scoliosis, problems with digestion, epilepsy and fits of extreme anxiety.
Current research on the syndrome is proving very promising and making great progress though is still far from a cure. Every step forward the research makes is a further step forward to helping these young girls and their families deal with the everyday tasks that are just that little bit harder for those suffering with Rett Syndrome. Yet any and every small step forward research can infinitely affect the day-to-day life of those affected bringing hope for a resolution.