[John] My son Rian was diagnosed with Fragile X Syndrome in 2015 at the age of 9.
Fragile X is a condition which affects the development of the X Chromosome and is the most common cause of significant learning difficulties in male children. The condition also affects the physical and mental development of the child. Fragile X is a lifelong condition and has far reaching impacts on the lives of affected children. There is no medical treatment for it, the only treatment is love, patience, understanding and support. The Fragile X Society is a charity which provides families affected by Fragile X with essential support, advice and guidance. For more information on Fragile X Syndrome and the Fragile X Society please click here
The Fragile X Society Charity is seriously under funded, and we would like to give something back for the support it has given us.
At the grand old age of 53 I have been talked into taking part in a 15K Tough Mudder event (including getting frozen, electrocuted and half droont) with my 'significantly younger' pal Frank Boyle. The event is taking place near Chester on 10th of September 2022 so we have 5 weeks to train and hopefully raise some much needed funds for the charity. It would be great if you could take the time to find out a bit more about Fragile X, and if your feeling generous make a small donation to our fund raising page. Any donations made will be very much appreciated. Check out the obstacles here: https://toughmudder.co.uk/obstacles/