Story
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Fletcher was diagnosed with parameningeal head and neck
embryonal rhabdomyosarcoma in the nasopharyngeal region on 9th May 2022 with metastases to the lungs and bone marrow. We were due to immigrate to Australia with flights booked for the 17th May. He was finally diagnosed after multiple trips to our GP and local A&E with a large lump on the side of his neck, each time being turned away and told to keep an eye on it. When he began having double vision they performed an MRI test where the tumour was found. We were quickly transferred to Bristol where
Fletch underwent a 15 hour surgery to save his eyesight by debulking the tumour. This was successful and he was
started on IVADO chemotherapy. He was to have 9 sessions of chemo followed by 28 sessions of radiotherapy. Fletch had a great response to treatment and had clear scans at the 3 month mark. However following completion of his radiotherapy and 7 rounds of chemo, on our way home he had a massive seizure in the back of the car. He was transferred to PICU in Oxford as
Bristol had no beds. Following multiple MRI scans, lumber punctures and CTs and more seizures we were told the
devastating news that Fletchers cancer had returned to his brain and spine and there was no treatment options. We were
transferred to a Charlton Farm Childrens hospice where fletch died on the 16th November 2022. Please visit Fletchers Arc at
Alice's Arc (alicesarc.org) for the full story. Thank you for reading. Any donations are gratefully received and will be a huge help to Alices Arc to continue the great work they are doing.