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Fionn Buckley · 26 February 2021

We raise funds for patients with EB to help deal with the many challenges of EB

Story

Hi all,

I'm taking part in this charity event to raise money for a worthy cause in Debra Ireland to support patients and families effected by EB (epidermolysis bullosa). The event is being setup by Kalebh Fynes who was directly affected by EB when his brother passed away from the illness in 2001.  

Myself and Kalebh will be doing the 21km run in Taiwan in April, while others will be taking part in Netherlands and also Ireland. Its for a good cause and hopefully after the initial setup this year, the event can get stronger and stronger from here on out. 

The event is being run using JustGiving, a platform which does not have any fees, and the money goes directly into the chosen charities account, which is linked directly to the event.

Any donations at all are welcome, or if you are willing to get involved in the run even better. The 21km doesnt need to be run on your own. It can be carried out in any form such as just walking or even splitting it up between 3/4 people. 

If you have any questions reach out to me on facebook or instagram, or if you dont have either platform my e-mail is fionnbuck123@gmail.com. 




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About the charity

DEBRA Ireland provides support to all those living with EB. We receive no guaranteed funding, so we rely on the generosity of our supporters and fundraising campaigns in order to continue the level of support that we offer our patients. Without this support our services would cease to exist.

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