Hi everyone,

Thank you for coming here and considering a donation to DEBRA Ireland. I am hoping to raise funds and raise awareness for families living with EB by taking on a Marathon in a Weekend
Challenge from 24 – 26 October. I plan to walk 42km over the October bank holiday weekend and am hoping to raise as much money as I can.

EB (epidermolysis bullosa) is a rare, painful and extremely debilitating  skin condition. There is no cure. Babies born with EB have skin that is extremely delicate and can blister at the slightest touch. 

Daily, painful bandage changes are a way of life for those suffering from EB. Part of Debra's support for EB families is in organising and providing funding for specially trained nurses to complete these bandage changes, a  difficult, counter-intuitive  task which otherwise falls to parents. This is but one element of the daily challenges which face our EB families

DEBRA Ireland is the only charity in Ireland supporting families affected by EB. Your support means they can continue to provide their services as well as invest in research to find a cure.

You may know that I am a board member of DEBRA Ireland and I also had a cousin, Cora, who lived with EB before she passed away ten years ago. So, I am taking this challenge on in her memory.

Any donation, no matter how small, would be very much appreciated.

 Thank you

Fiona

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