Story
Felix, Elliot, & Grace's Superheroes Team Members so far:
Felix, Elliot, Grace, Matt, & Colleen White, Paula Murphy Ives, Luca, Esmé, Emma, Chris & Capron, Sara & Ashley Sims, Kris, William, Grace, & Samuel Botterill, Mel, Louis, Sam, & Ellis Williams, Elena & Alex Harris, Angela Duffy, Paddy Connolly, Claire, Eve, Bethany & Lauren Hull, Claire & Dylan Tompkins, Sandra, Teddy & Elliott Hoare, Sally, Ben & Matti Lindberg, Daisy Hubble & Friends, Helen, Chris, Lily & Evie Jewell, Manja, Zara , Sienna and Luca Williams, Angela Kallabis, Helen, Cameron, Amy & Jessie Cox, Celia, Jack & Frank Hodges, Cheryl & Jorgen Bartsch, Sue, Madeline & Tom Hogan, Nick, Sam & Rosanna Kember, Shoonagh, Polly & Matilda Hubble, Helen, Claudia & Leah Watson, Rachel Ligard, Francesca Ferrari & Charlie Minshull, Naima & Kian Mulenga, Sarah Eccleston, Amber, Jasmine & Leo Duffy, Finlay Scott, Thomas & Isabel Siddle, Polly & Daisy Kempston,
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On February 14th 2009
Felix White, age 4, was diagnosed with Stage 4 Neuroblastoma, a rare and very
aggressive form of childhood cancer. He started complaining of "back hurt"
and two weeks later a large tumour stemming from his adrenal gland was
discovered. The cancer had also spread to his bone marrow.
Over the past 13 months, Felix has had 17 rounds of chemotherapy, surgery to remove
the tumour, internal radiation and he has just returned home to recover from high dose chemotherapy and bone marrow transplant.
On April 19th Felix will start 3 weeks of external radiation, followed by immunotherapy for 5 months. Devastatingly Neuroblastoma is extremely difficult to treat and often relapses, so cure rates are low. However there is now a breakthrough antibody treatment from the US which is showing huge success in avoiding relapse.
Unfortunately it is only available in a trial situation, worldwide supplies are limited and the costs are high. Felix's parents are working hard to ensure that he gets this either in the US or here in Europe. THIS
ANTIBODY TREATMENT WILL INCREASE FELIX'S CHANCE OF LONG TERM SURVIVAL
TO 70%. HE WILL NEED TO START THIS TREATMENT BY JUNE 9TH.
Despite all
the aggressive and invasive treatment
so far, Felix has never once complained and has become a true
living Power Ranger, blasting
out all the baddies one minute and running like the wind on his
favourite secret path forest walks the
next. He has been such an amazing inspiration to his parents, identical
twin brother Elliot, big sister Grace and all the the many lives he has
touched so far. He teaches us everyday the
importance of truly and completely savouring the present moment. He
deserves the best
possible chance for cure, and hopefully with all of us pitching in
together,
he’ll get it. Time is of the essence, and Felix's time is now...
Thank you so much for taking the time to visit our JustGiving page.
For more information about Felix, his journey so far and other fundraising efforts click on http://www.appeal4felix.com