Have you ever heard of PSP?….and we don’t mean the Sony one!

We hadn’t until last August, when our Dad & Mary’s husband, John, was diagnosed with this rare, degenerative brain disease.

To raise much needed awareness and funding, we are taking part in the Flora Women’s Mini on Monday, 2nd June. We would be very grateful for your support.

Unfortunately, very little is known about the disease, due to its rarity and it being in the very early stages of research. Only around 270 people in suffer from it. What we do know at present is, there is no cure and it is very difficult to treat & manage.

PSPA has only recently been established. Their aim is to provide awareness as well as a support for patients / carers / families. Sadly there is no government funding but awareness is just as vital as hopefully more awareness will eventually lead to funding / further research, and maybe one a day a cure.

So, what is PSP (Progressive Supranuclear Palsy)?

PSP is caused by the progressive death of nerve cells in the brain, leading to difficulty with balance, movement, vision, speech and swallowing. It is so called because it’s:

Progressive – it gets steadily worse over time

Supranuclear – it damages parts of the brain that control eye movements

Palsy – it causes muscle weakness

We are delighted to say that some friends and family are also joining us in the run / walk with fundraising. They are:

Noelle Willis

Luci Gately

Lisa Perkins

Kate Woulfe

Caroline Freyne

If you would like to join us, please let us know. The more the merrier!

Thanks

Mary, Sarah, Maria & Emma