Ewan Gordon

Amy and Friends Cockayne Syndrome Support

Fundraising for Amy and Friends
£3,558
raised
Donations cannot currently be made to this page
In memory of Thomas Laurie
Amy and Friends

Verified by JustGiving

RCN 1119746

Story

Thanks for taking the time to visit my JustGiving page.

I met Thomas Laurie at Church about 5 years ago, Thomas Laurie suffered from Cockayne Syndrome and spent 9 years fighting this genetic condition. He sadly died on 19th February 2014 and I have dedicated all my running to raise awareness for Cockayne Syndrome and other family's with this life limiting condition.

I have run many Marathon's since I started running in 2011, the MK Marathon, Loch Ness Marathon, Reading Half, Oxford Half, Dirt Half, Liverpool Half, Brighton Marathon, Edinburgh, Chester and next year (2015) I intend to live out my dream of competing in the Rome and Florence Marathon's as well as running from John O'Groats to Lands End.

Like Forrest Gump, I run because I feel the need to and I will stop when my work is done, I will stop when they find a cure to Cockayne Syndrome, as yet there is no known cure.

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About the charity

Amy and Friends

Verified by JustGiving

RCN 1119746
Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Donation summary

Total raised
£3,557.56
+ £837.25 Gift Aid
Online donations
£3,557.56
Offline donations
£0.00

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