Ella Shipley

Ella & Sam's page

Fundraising for Nystagmus Network
£1,300
raised of £1,000 target
Donations cannot currently be made to this page
Event: Eye to Eye 4 mile, on 10 March 2019
Participants: Sam Harris
Nystagmus Network

Verified by JustGiving

RCN 1180450
We foster and fund research to improve lives for people with nystagmus.

Story

Thanks for taking the time to visit our JustGiving page.

Ella has decided to take on this challenge because she has congenital Nystagmus (more in-depth information can be found on the Nystagmus Network’s website here: https://nystagmusnetwork.org/what-is-nystagmus/congenital-nystagmus/) and she's registered blind. 

In Ella's own words she writes: "Nystagmus is an eye condition where the eyes move involuntary (in my case they move from side to side) and can significantly reduce an individuals vision. Symptoms I experience: include: my ability to focus on things (both near and far) and depth perception are affected, I struggle in busy environments, my eyes to tire quicker (it takes me a lot longer to complete simple tasks such as reading a lot of text, especially if it’s small) and can become worse when I am tired or stressed. I have had Nystagmus since birth, and there is no known cure.

However, this has never been a negative - I embrace it and have things that help enable me to live the best life possible despite my disabilities. I use specialist software on my laptop and have materials in large print amongst other things, most recently allowing me to complete my undergraduate degree at Nottingham Trent University. I also use a long white cane to help me when I’m out doing everyday things and travelling. My friends and family are always on hand to offer support if I need it."

Sam and I will be walking the 14-mile route from the Moorfields Eye Hospital to the London Eye, in the hope that the money we raise will help to fund life-changing research for those of us living with Nystagmus and the future generations of people who the Nystagmus Network will support. 

A massive thanks to Sam for also doing this with me. Sam is always incredibly supportive of me in general and whenever I have taken on a fundraising challenge. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

We would appreciate everyone’s donations (big or small!) and if you can tell your friends and family and spread the word on social media, it would mean the world!

Ella & Sam xxx

About the charity

Nystagmus Network

Verified by JustGiving

RCN 1180450
Nystagmus means involuntary movements of the eye. It impairs vision, affecting focus and depth perception. At least 1 in 1,000 babies are born with nystagmus. There is currently no cure. The Nystagmus Network is a UK registered charity which provides support, raises awareness and funds research.

Donation summary

Total raised
£1,300.00
+ £240.00 Gift Aid
Online donations
£1,300.00
Offline donations
£0.00

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