Enola has Morquio Disease:  Morquio disease is one of the mucopolysaccharidosis, also known as MPS lV.  It is a rare metabolic condition.  In the UK there are approximately 82 individuals with Morquio.  It is a degenerative condition causing severe physical disability and skeletal problems.  Many individuals may not grow more than a metre tall and will become increasingly dependant.  Individuals have a severely restricted range of movement and suffer pain and discomfort in all their joints. 

The MPS Society funds and supports a number of projects which includes the potential treatment for the disease (Enzyme Replacement Therapy) that is around the corner.  The Society has kept individuals informed through their seasonal magazine.  They also facilitated an International Morquio Conference bringing medical experts and pharmacutical companies together with sufferers and families to explain the future of treatment.

Enola does not let anything stand in her way, even now (wearing the HALO); she has an amazing character and presence.  Enola has and will benefit from the support given to the Society.  I want to do everything and anything in my power to enable her to succeed and enjoy her life to the fullest and I would appreciate every ones support.

There are number of friends and family taking part in the walk/climb to the top of Snowdon.  The journey is 9 miles long with an ascent of 955m, which should take upto 5 hours. (3-4 hours to the top and the same back down)  Please support, all involved are giving alot of time and "energy" to support this worthy cause of which I am extremely grateful.

Only a matter of days to go now.  I can't bring myself to check the weather forecast!

Wow, not a walk, every muscle has told me it was a climb!!  Thanks to all that participated, it was a fantastic experience.

Thanks for visiting my fundraising page.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: The Society For Mucopolysaccharide Diseases gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!