Story
Slightly overwhelmed but here goes…
In 2018 I became a mum to the most beautiful girl, Nola. I find it difficult to talk about her birth as it was the most traumatic experience of my life. In short - Nola received CPR immediately from birth after being starved of oxygen due to my placenta rupturing during labour resulting in an emergency c section. She was also born with a genetic syndrome, Fragile X. Nola has 200+ repeats of the gene which affects her brain due to none or the lack of a certain protein which supports brain development. MOST IMPORTANTLY, Nola is happy & healthy, everything any parent wants - i will always, in some way be giving back or raising awareness for children and adults living with complex needs. SO - I'm fundraising for Sense, a charity that believes that no one, no matter how complex their disabilities, should be isolated, left out, or unable to fulfil their potential.Their experts offer personalised support through their centres, holidays and short breaks, or in people’s own homes. They are here for everyone who needs them, for as long as they need them – providing early intervention for children, helping young people access education, and supporting the transition into adulthood and beyond.