We are hiking the Staffordshire three peaks to raise money for Emmie.

Emmie has a rare form of skeletal dysplasia and a rare genetic condition called kniest dysplasia which only one in a million people live in the world with. 

Although Emmie is 5 years old she is only the size of a 18 month old baby and she has short arms and legs. She is a real warrior and has overcome so many challenges including having over 16 different casts on her feet. Emmie is non verbal and has a communication device and has learnt how to sign meaning she can now boss her big brother Adam around! She is a brave funny, caring and always smiling (just like her incredible mummy).

But Emmie needs surgery on her eyes, her feet, her cleft palate and her spine. Her skeleton is pressing down her spinal cord.

Emmie is always trying to overcome obstacles and yet before Christmas the doctors told Emmies family something that made their world come crashing down. They said they believe that it is too risky to do the surgery on her spine (or anywhere else that she needs it) and that they should think more about helping Emmie live her best life now rather than putting her through dangerous surgery that could give her a worse outcome. This difficult decision means that Emmie is not expected to live past her 10th birthday.

So, this is why we are supporting fundraising to help Emmie to have everything that she is going to need to help her to stay strong and keep moving, and to help have adaptions in her home for Emmie to be able to do basic things, like have a wheelchair accessible bathroom. Without the surgeries she will likely lose use of her limbs and potentially also her sight so we want to ensure Emmie is equipped to give her the best chance possible to meet her future needs, and also make amazing memories with her family. 

We are going to be hiking the Staffordshire 3 peaks on 1 May 2023 to help raise money for Emmie. This is a 7/8 hour hike up 3 of Staffordshires highest points. We know finances are tight for people at the moment but any donation no matter how small will really help lovely Emmie and her family.

Thank you for reading and thank you for any donations.

Love Sophie , Jordan,  Leah and Vanessa xx

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