Thanks for visiting my JustGiving Page! I’m fundraising to support the amazing work The National Children's Foundation do. 

Noah's story

Noah is an amazing happy and smiling little 2 year old boy.

Unfortunately Noah suffers from a rare genetic disorder Ponotocerebellar  Hypoplasia, this condition effects the growth to part of the brain.  All forms of this condition are charactised by impaired brain development, problems with movement, intellectual disability and overall delayed development. 

Alongside this Noah has an unsafe swallow reflex, which in turn means Noah has to fed into his bowl via a tube. 

Noah also suffered from epilepsy and a movement disorder called Dystonia. The Dystonia triggers him to have muscle spasms which cause serve pain.

Noah has global development delay which means he can't roll, sit up unaided, crawl or walk.

If this isn't enough Noah also has a heart condition  Aortic Stenosis. He has received a procedure due to this condition back when he was 10 months old, and is currently waiting for a date for further open heart surgery.

We are trying to raise funds for Noah to provide him and his family with a specialised pushchair which costs £3,500 and any other equipment that is needed which isn't funded through the NHS and costs to much money for Noah's family to buy. 

It would be great if you could donate and share my Page so I can raise as much as possible to help them raise money for sick & disabled children to improve the lives of them & their family. Thank you.

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