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My family and I have decided to take part in some events to raise money and awareness for the Cystic Fibrosis Trust.

Events we are taking part in:

Alex will be taking part in her 2nd 1 mile walk at Blackpool Zoo on Sunday 22nd of May as well as other family members, we did this last year and had a fabulous time. My mum (Teresa Meyer) and I will be taking part in a 10 mile walk - Whitby 199 Steps Coastal walk on Sunday 12th of June and I will also be taking part in the City of Manchester 10k run on Sunday July the 3rd along side Alex's daddy Stephen Darkin and Godfather Edward D'Souza and other family members.

Here is our story and the reason we support the Cystic Fibrosis trust and the work they do:

By now you will all be aware that my 4 year old daughter Alex has Cystic Fibrosis. She has had a tough start to her little life and had to spend over 7 months in hospital but she has managed to get through it with her fighting spirit.

We found out Alex had cystic fibrosis 3 weeks after she was born; they tested Alex for CF due to her having a blocked bowel. Alex's 1st operation was when she was one day old to clear a blocked bowel caused by meconium ileus (thick black material present in all new born babies) being unable to pass through her bowel. 3 months later Alex was rushed back into hospital with another blocked bowel, this time caused by adhesions which were due to her first operation. 1 year later Alex was once again rushed back into hospital for her third operation where the surgeons decided to perform an ileostomy to give her bowel a break, this meant Alex had to wear a stoma bag for over 3 months before they reversed the ileostomy. Since the reversal Alex has been admitted in hospital twice with a blocked bowel, (both times she was in for over a week) the most recent being in February this year. Thankfully on both occasions they have been able to clear the blockages with bowel washouts and a lot of laxatives on a daily basis.

Alex's condition means that she will always experience problems with her bowels, lungs and other organs.We help Alex to fight this disease by performing physio on her twice a day to help clear the thick, sticky mucus that gets clogged up in her body, she is also on between 15-20 tablets a day these help her digest her food and fight any infection/bug she is likely to catch. She will have to have physio and stay on medication for the rest of her life.

More information about CF:

• Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
• Cystic Fibrosis affects over 9,000 people in the UK.
• Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
• If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
• Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
• Each week, five babies are born with Cystic Fibrosis.
• Each week, two young lives are lost to Cystic Fibrosis.
• Only half of those living with Cystic Fibrosis are likely to live past their late 30s

I would be very grateful for any amount of sponsorship or alternatively if you are interested in taking part in one of the events then feel free to contact me via facebook or email: emeyer@btinternet.com and I will happily forward on the details.

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Thanks in advance xxx