Story
Team Harry: Emma, Vikki, Jay; Ceri, Kayleigh, Kelly, Sarah and Faye.
We all have the same reason for doing this Challenge of snowdon and that is a special happy little boy called Harry George Thorogood who has Dravet syndrome.
The support we get from this charity is simply the best and been a huge support since harry was diagnosed.
Climbing Snowdon is a fantastic challenge and will be a memorable day for all.Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome and other related genetic sodium channel epilepsies through medical research, education, awareness and support.£5 helps pay for the postage of a Family Welcome Pack & Guide to Dravet Syndrome£30 helps pay for Portable Finger Oximeter or one Super Siblings Award£50 helps pay for a Family Gathering Grant£125 helps pay for a Video Monitor£250 helps pays for a family grant to Center Parcs or one MedPage Monitor£1,000 helps pay for the drafting, design & printing of 5000 information leaflets or an Adult Assistance Grant£2,000 helps pay for Sibling Activities at Center ParcsTo date, since being founded in 2008 Dravet Syndrome UK has funded over £350,000 of research