Story
Update 14/11/22 -
So, we did it - we walked 16 miles to raise money for this wonderful charity in memory of Dad. My brother ran the route and met us at the finish line. Me, the girls and Zach were much slower but the scenery along the canal from Kidderminster to Halfpenny Green airport was too spectacular to rush.
We are nearly at 10k - final push - please help if you can.
Thank you all for your continued support, kind words and friendship!
xxx
31/10/22 I am walking 16 miles from Kidderminster to Halfpenny Green Airport on the 13th of November to raise money for this amazing charity in memory of my dad, Dave. Halfpenny Green Airport was his favourite place, where he learnt to fly over 30 years ago and where he continued to fly right up until he passed away.
12 of my wonderful friends are walking with me!
I would like to thank you all for your generous donations and your continued support. Emma x
Our hearts are shattered after losing our wonderful dad, husband, brother and grandad to CJD on the 7th July. He was diagnosed on the 17th of June and his symptoms started only 6 weeks prior to diagnosis.
The last 9 weeks have been a shock to us all and seeing him suffer from this cruel disease has been heart breaking.
A professor from The National CJD Research and Surveillance Unit, came down from Edinburgh to the Queen Elizabeth Hospital Birmingham to give Dad the diagnosis. The knowledge, empathy, manner and kindness shown by him and his colleagues will always be something that our family will remember with great appreciation.
CJD is extremely rare, affecting only 1 or 2 people in every million each year in the UK. This charity needs more donations and funding to help them continue their research into this devastating disease, so a cure or treatment can be found to prevent other families having to go through what we went through.
THANK YOU from us all, for taking the time to read this, and for your kind and thoughtful donation in Dave's memory.
Creutzfeldt-Jakob Disease (CJD) is a rare illness and is one of a group of diseases called prion diseases, which affect humans and animals. Prion diseases exist in different forms, all of which are progressive, currently untreatable and ultimately fatal. The National CJD Research & Surveillance Unit aims to monitor the characteristics of all forms of CJD, to identify trends in incidence rates, to study risk factors for the development of disease and to contribute to improving the quality of care for those with CJD. Based at the Western General Hospital in Edinburgh, the Unit brings together a team of clinical neurologists, neuropathologists, scientists and others.