Story
My name is Ella and I was born with a rare genetic condition called craniofrontal nasal displaysia. Which caused bones to fuse together early in the womb thus causing facial asymmetry and affecting my visible appearance. I’ve always been proud of the way I look and not let that stop me from doing all the things I wanted to achieve in life.
Over the years I have had the pleasure of representing the charity changing faces in various campaigns telling people my story which I often do through my passion for running.
Changing Faces is the UK's leading charity for everyone who has a mark, scar or condition that makes them look different. Being different in a society where there is such pressure to look a certain way is tough. For over 25 years we have been providing advice and support, challenging discrimination, and campaigning for a world that respects difference. We want a future where everyone with a visible difference on their face or body has the confidence, support and opportunity to lead the lives they want.