The MPS Society fundraising team would like to thank each and every one of you who has kindly donated so far. Thank you for spurring on our lovely Elaine and for supporting our rare disease community.

Thanks for visiting my JustGiving page.

I am running the Great North Run to raise money for the MPS Society (Society for Mucopolysaccharide Diseases), which supports individuals and families affected by MPS, Fabry and related lysosomal diseases, a group of 27 rare genetic conditions. These diseases are life-limiting and cause a range of progressive disabilities. Although therapies can slow the progression of some of the diseases, there is currently no cure. Because of the rarity of the conditions, families and individuals affected struggle to find the support they need. The MPS Society is here to help, providing expert advice and support, and campaigning for earlier diagnosis and effective treatments.

I work for the MPS Society as Grants & Trusts Officer,raising funds for our Advocacy and Support Service, who are always on hand to help our rare community at any time on their journey. I am proud to work for our dedicated team and am moved by stories of the many challenges our community faces.

I thought it was time I took my fundraising away from my computer keyboard and onto the open road! I have never taken part in an event like this before, and it’s a lot further than I’ve ever run, so it will be a significant challenge. The training starts here! I would be grateful for anything you are able to spare towards this good cause.