Edward King
A swim and a run for the Motor Neurone Disease Association
Fundraising for Motor Neurone Disease Association
Story
While on holiday in Spain in November 2018, my Dad noticed that he had begun to slur his speech. After numerous tests, he finally received the devastating diagnosis of Motor Neurone Disease in December 2019. Since then, the Motor Neurone Disease Association (MNDA) has provided an enormous amount of practical and emotional help and support, providing hope and dignity for my Dad and our family throughout this incredibly difficult time.
With the support of my family, I am raising money so that the MNDA can keep doing their excellent work: facilitating access to the necessary care; keeping MND sufferers and their families informed about the latest research; and providing them with a community of people facing similar challenges.
To raise money for the MNDA, I'll be taking part in two events this Autumn: the 7km Wild Wye Swim in September and the Oxford Half Marathon in October. We would be delighted if you could help us raise money for this excellent organisation that provides indispensable support to the thousands of MND sufferers in the UK.
Here's what the MND Association will be able to achieve with your donations:
£10 - Provides an information pack for a newly diagnosed person with MND.
£30 - Buys an adapted cutlery set to help someone with MND continue to feed themselves.
£40 - Funds an MND expert researcher for half a day.
£95 - Runs the MND Connect support and information line for one hour.
£100 - Funds laboratory equipment for two days’ vital research into finding out the causes of MND.
£200 - Could produce 40 copies of ‘So what is MND anyway?’, our guide for young people affected by MND.
£300 - Provides a basic level of respite care for one day.
£550 - Could fund a tablet device with communication software, giving the ability to communicate with loved ones.
£600 - Will fund a seat riser allowing someone with MND to raise their wheelchair so that they can reach shelves and talk to someone at eye level.
£1,000 - Will pay for detailed analysis of the DNA of someone with MND to help us better understand the causes of the disease.
£1,500 - Funds the installation of a straight stair lift for someone with MND to gain access around the house.
£2,000 - Could fund MRI scans for five study participants, helping researchers better understand MND.
£3,500 - Buys a Lightwriter to give someone with MND the ability to continue to communicate with their loved ones.
£4,000 - Could fund a person with MND to participate in a clinical trial for a year.
For more information on MND and how we can beat it, do visit the MND Association website, https://www.mndassociation.org/
To have a better understanding of what life is like with MND, do watch the short BBC documentary, Rob Burrow: My Year With MND https://www.bbc.co.uk/iplayer/episode/m000nggd/rob-burrow-my-year-with-mnd