Story
Hi All,
Thank you for taking the time to view my Just Giving Page.
I am apart of the EDS Merseyside support group and will be completing a sponsored walk, for their charity month.
I was diagnosed with Hypermobile Ehlers Danlos Syndrome in 2021 after a long battle with my health. EDS is rare and a diagnosis takes on average 10 years. I am hoping to raise money to spread awareness for the condition and provide training for medical professionals.
EDS is a connective tissue disorder which affects every inch of my body. This is caused by a fault in my collagen.
Some of the many symptoms I experience include, dislocations of every joint, extreme pain and fatigue. My skin is extremely stretchy and my joints are super bendy.. this is good for party tricks! However it means healing after operations is pretty difficult, not to mention my body doesnt absorb anaesthetic the same way as others. With this information it is vital that medical professionals are made aware, but sadly most doctors I meet, still ask for an explanation of my condition. This makes hospital trips very scary!
Please have a look at the EDS UK website for more information of Ehlers Danlos Syndrome.
Any donations are appreciated 🦓