Cystic Fibrosis is a chronic life altering condition that became our world when our daughter Hazel was diagnosed in June 2021. 

Hazel’s diagnoses turned our world upside down and to be completely honest neither my partner or myself knew anything about cystic fibrosis. Thankfully, through early clinical intervention, participation in research trials and incredible amounts of support, Hazel has gone from strength to strength and reminds us every single day that nothing will ever hold her back!

I say life altering rather than life limiting as everything we have been through so far has taught us that our life as a family and Hazel’s life as an individual can be fulfilling, positive and happy and that is all we need. We did not come to this mindset easily, but for the support of family, friends, Cystic Fibrosis Ireland and the incredible cystic fibrosis community.

Cystic Fibrosis Ireland are the national representative organization for people with Cystic Fibrosis (pwCF) in Ireland and their work includes but is not limited to advocacy, fertility support for pwCF, exercise grants, counselling, bereavement support, research and research funding, education and raising awareness.

This will be my second time taking part in the Malin2Mizen Cycle4CF and it may be the second time I ask of you to support this incredible cause. With that said I want you to know that every euro donated, every like, share and word of support, is truly appreciated and will have an impact greater than you can imagine!

Thank you so much for reading this and supporting us,

Dylan, Joanne and Hazel.