Thank you for visiting my Speechless for Rett page!
One of the many devastating symptoms of Rett Syndrome is the loss of speech.
Imagine being unable to speak to those around you, to voice your opinion, to let others know what you feel, to have a say in your world.
This June, I'm going 'speechless' for just a few hours to get a glimpse into what it might be like not to have a voice.
Like many children/adults with Rett Syndrome, I'll be using my eyes and a simple communication grid to make my feelings/needs/opinions known.
I hope to raise awareness and empathy as well as critical funding to drive forward clinical trials and treatments for everyone affected by Rett Syndrome.
Thank you so much for your support!