Story
Our 11 year old son Will has a horrible genetic muscle wasting condition called Duchenne Muscular Dystrophy (DMD). It is weakening his muscles, taking away his mobility, and will eventually impact every part of his life. Right now, there is no effective treatment available to slow or stop the progress of the condition.
But there is hope. Huge advances in gene therapy and other medical science are being made. A treatment really cannot come soon enough. We want to raise awareness of DMD, and of the incredible work that scientists in the UK are doing to try and find a treatment. And at the same time, raise money that will accelerate their research.
So starting at Great Ormond Street Hospital in London on Thursday 12th August, we, and a team of our amazing friends will attempt to ride to the MDUK Neuromuscular Centre at Oxford University, to Alder Hey Hospital in Liverpool and finish at the Centre for Life in Newcastle on Saturday 14th August - a distance of over 380 miles in three days. In anyone’s book, this is a huge, huge challenge!
Will himself will be a central part of this event as part of the support crew, and hopes to ride some small distances with the team on his Ebike.
All of the money raised by the DUCHENNE RESEARCH RELAY will go directly to the Muscular Dystrophy UK Duchenne Breakthrough Research Fund.
Please support us as we take this on, and donate if you can. Thank You.