Story
Around 1 in 200 people in the UK live with axial Spondyloarthritis, or axial SpA for short, a painful, progressive form of inflammatory arthritis associated with a severe physical limitation, functional impairment, and decreased life quality. There is currently no cure. Axial SpA is more common than MS and Parkinsons combined, yet public awareness remains low, and there are multiple challenges in treatment, including an average 8.5-year delay to diagnosis. I'm putting my best foot forward to raise vital funds for NASS and provide specialist support, advice and the most up-to-date information to empower people with axial SpA (AS) to manage their condition. Please dig deep and sponsor me generously!
I was diagnosed once the AS had fused my spine (apparently it looks like a bamboo walking stick now, but you can't have it - I'm using it!) so hopefully, the work of NASS means that others will be diagnosed far quicker. I'm walking 1000 miles in 2021 anyway for a different challenge, so if you donate a penny for every mile that's only £10. Of course, if you want to up it to £1 a mile, then that'd be top! You can keep up to date with my progress here: https://www.myvirtualmission.com/user/index/1134964