Event Details

• When: November 14th and 15th
  
• Where: Jolly Llama Yoga in Newtown Square, PA (in-person and via Zoom)
• Classes are all donation-based and 100% of the donations will benefit CURE Epilepsy
• Wearing purple for Epilepsy Awareness Month is encouraged

Dominic's story

    Before August 26, 2017, I knew nothing about epilepsy. All of that changed when Dominic, my happy, healthy, two-year-old boy suffered his first seizure. Within two months, he developed four different seizure types and was taking four anti-epileptic medications in an attempt to combat them. An attempt that was unsuccessful. I watched my son go from an energetic, gregarious toddler to having over 1,000 seizures in a single day.
    There aren’t words to describe the grief of watching him suffer, nor the torture of speculating the unknown for him and our family. He was eventually diagnosed with Doose Syndrome, a rare and severe form of childhood epilepsy that is notoriously resistant to medication. The first year of his seizure onset included eleven hospitalizations, nine ambulance rides, a helicopter flight, and more pokes and prods than any child should ever know.
    In November of 2017, Dominic was placed on a medically prescribed version of the ketogenic diet, which means that all of his meals are calculated to a specific ratio and every ingredient is weighed to the tenth of a gram. While the diet is difficult and restrictive, it’s the only treatment that has proven to be effective. He has improved significantly, but we are still striving to attain seizure freedom.
    There is so much work to be done in the fight against epilepsy. Our Dominic’s syndrome is rare, but epilepsy is not. Our mission is to share Dominic's story in order to spread awareness, educate people about epilepsy, and raise funds for a cure.