My best friend in our village has a young boy whom I have loved since birth. The siblings, the whole family has faced every obstacle imaginable and not just those related to Duchenne.

Now more then ever I cannot help as much as I used to and need to help in some small way. Feeling so powerless I need to help them, even if indirectly, to raise the awareness of Duchenne. Of countless others who love families going through this.

To have their support in doing this means the world. I would never want to be insensitive to anyone's wishes and have chosen this charity as they have been a source of information and support.

Please note I have signed up to a self funded place on the event in the Peak District so 100% of the donations go to the charity.

The challenge is for me, the fundraising is for love. 

And why Action Duchenne?

Duchenne muscular dystrophy (DMD) is a rare genetic muscle wasting condition affecting around 2,500 people in the UK – the vast majority being male. The body does not produce a protein called dystrophin which is needed for muscle function. Usually diagnosed around the age of 4 years, parents are told the devastating news that the life expectancy of their child is around 30 years – the worst news you could ever expect to hear. DMD severely affects quality of life; in time, a wheelchair is used full-time and eventually all of the muscles in the body stop working. Ventilation is needed to assist with breathing and death usually occurs from heart failure. There are currently no cures or treatment options available to the entire population who have the condition – this is what Action Duchenne is working hard to change. Established in 2001, Action Duchenne  work tirelessly to deliver the overall vision of the charity - 'a world where lives are no longer limited by Duchenne muscular dystrophy' 

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