Thanks for taking the time to visit my JustGiving page.

As many of you know our beautiful daughter Lizzy has been diagnosed with EDS (Ehlers Danlos Syndrome) which means all of her joints dislocate, she is in constant acute pain which does not respond to painkillers and has great difficulty sleeping and so is constantly exhausted.

Without the support of Ehlers Danlos Support UK we would still be struggling to understand and support Lizzy to manage her condition.

Throughout this year we will be undertaking a range of fund raising activities and would invite all our family and friends to donate from a distance.

May is Rare Diseases month and also the month Cliff and I celebrate our birthdays so please celebrate with us by helping us raise money for research into this rare disease and to educate the medical profession!

Thank you in anticipation for your support.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.