dean medhurst

Rare Disease uk

Fundraising for Genetic Alliance UK - Rare Disease UK
£50
raised of £1,400 target
by 3 supporters
Donations cannot currently be made to this page
Event: London to Brighton Cycle Ride 2019, on 15 September 2019
Rare Disease Day is a global event that aims to raise awareness of rare diseases and improve access to treatment and support for those living with rare conditions.

Story

I am doing this cycle ride for rare diseases UK as I was diagnosed with aorrp in January after not being able to talk without being in pain since then I have had my first operation which has changed me completely as I'm now able to talk fine and have no pain but it will keep growing back and is no cure for this so I'm trying to raise as much money for rare diseases as I can to try to help get enough money to make a cure for this disease and many other rare diseases so please donate it's for a great cause.

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About the campaign

Rare Disease Day is a global event that aims to raise awareness of rare diseases and improve access to treatment and support for those living with rare conditions.

About the charity

Rare Disease UK is a national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support. Rare Disease UK is a campaign run by the charity Genetic Alliance UK.
Find out more about fundraising with JustGiving

Donation summary

Total raised
£50.00
Online donations
£50.00
Offline donations
£0.00

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