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My son Jason suffers from a condition called Duchenne Muscular Dystrophy (DMD) which is a gene-related disorder that causes progressive muscle weakness throughout the body. Whilst Jason is a very happy child we are constantly reminded of the seriousness of his condition and what the future holds.
In summary, DMD will strip Jason of all his mobility over time. Currently Jason wears splints every night and has daily physio in order to keep him walking for as long as possible. Once he loses his ability to walk he will be confined to a wheelchair (average age ~10 years) for the rest of his shortened life.
As his condition progresses it will affect both his respiratory and cardiac muscles resulting in progressive paralysis and Jason needing to have night time ventilation. This will ultimately lead to an early death.
The condition not only has a physical impact, but has affected Jason's learning ability such that he now has additional support at school for both his physical and learning problems.

At present there is no cure for DMD. The main management of the condition is to try to keep the child walking for as long as possible. This is mainly achieved by physiotherapy. The use of steroids has proved to be beneficial, though close monitoring is required.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Action Duchenne will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor me now and help raise much needed funds to help find a cure for this devastating condition.

Many thanks for your support.