Thanks for taking the time to visit my JustGiving page. 

Myself & my little boy have decided to do some fundraising for MND Scotland and also for my Dad & his granda who is currently fighting with this horrible disease 💔 . 

 MND Scotland are a small Scottish  charity who provide care & support to people affected by Motor Neurone Disease as well as funding vital research  into finding a cure. 

Their Vision - A world without  MND, Their Mission - to find a cure, deliver and transform care. 

MND is a rapidly progressing terminal illness which stops signals from the brain reaching the muscles. This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided. There is currently no cure of effective treatment for MND & the average life expectancy from diagnosis is just 18 months. There are currently around 400 people in Scotland living with MND. 

My Dad was diagnosed with MND beginning of December . Was back and forward at hospital for all sorts of tests etc. Was a long process which we where unaware of what was actually going on. In 2018 he got a new knee and was told would get the other one done as this was put down to the cause of all the problems ( needing new knees) .  The first time we heard the words “ progressive condition and something else going on “ was last year in June, the doctors & consultants  where adamant that there was something much more going on as he was having so many falls, couldn’t walk straight , dragging foot but you would think with that was normal if you where waiting for new knees right??!

Beginning of December it was confirmed that he has MND, something you never expect yourself or any of your family members being told.  To this day I am still not sure if my dad has processed it or it’s just that part of his MND that’s blocking it out.   He ended up in hospital for 4 weeks and came home the end of January right into his own hospital bed and has been bed bound since then & has Carers attending to him. He used to manage about his own way , shuffling. He is a changed man from then, parts of him are still there but all you see is what’s infront of you and what’s to come. It’s such a cruel horrendous terminal illness which needs more awareness, really is just a name until you experience it. And how do you explain it to kids? My 10 year old sort of knows, when he was told his words where “ what Fernando Ricksen had” 💔

He’s basically gave everything up, his work - he worked in Royal Mail  for years where he got his nickname OTTO,  he was so active and well liked. Never missed a day of work. He worked right up until the point where he no longer could.  Now all he’s got is his tv infront of him.  We are currently waiting on a special MND chair being made for him , this way he can at least have some time sitting up and out of his bed, and have just had funding to have the bathroom all changed into a wet room for him.

Devastating knowing that you can’t do anything , except just be there for that person. I can’t imagine what it’s like being in a body that’s basically shutting down and trapping you like a prisoner. It’s a hard thing to deal with but we have each other as a family & know the help and support is out there from MND Scotland.   

He has helped and carried us all through the years so now it’s our turn to do the same for him 💙

At the end of the Day , my Dads fight is my fight 💙

So myself and my little boy are doing some fundraising as a little team, we will push each other through. Starting off with the fun relay and have said target is 10k or more.

This is just the start of our fundraising journey, something we have never done 

We are looking for some donations ( Kai picked the £200 target) and would  hugely be grateful  for any  along the way, whatever this may be. As little as £1 helps, as every penny count to help get rid of this cruel horrendous Disease.

Let’s find a cure now!!

Every MND sufferer needs special equipment and this isn’t cheap, not to mention that grants and funding that the charity do. So this is our way of helping and giving back.

Thank you for just taking the time to read my page & thank you for any support ❤️

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.