david higham

david higham Fundraising Page

Fundraising for Batten Disease Family Association
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skydiving, 20 February 2009
We fund research and support families to find a cure to Batten disease

Story

Hi, Im am trying to raise awareness for batons disease as this is a little known illness that is very close to my heart. i have a very close friend with 2 children who suffer from this incureable disease. Ashleigh is 7. 12 months ago she was able to run an play with her friends and is currently is unable to walk, talk and has to be fed via a tube, her younger sister, Turtle, aged 2 has recently been diagnosed with the same disease.

I intend to throw myself out of a perfectly good aeroplane (sorry to disappoint, but i ll have a parachute strapped to my back) from 15 000 ft, it is a tandem dive enabling a freefall of 3km reaching 120mph.

Thanks for visiting my fundraising page.

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So please sponsor me now!

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About the charity

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

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