Children's Brain Tumour Research Centre (www.cbtrc.org)
As the foundation co-director of the Children's Brain Tumour Research Centre (CBTRC), I am delighted to be able to celebrate the 20th anniversary of this research group within the University of Nottingham.
The CBTRC would not have been launched without generous public support, which has driven the sustained clinical and scientific effort of those working in CBTRC. They are to be congratulated for their extraordinary efforts.
What have we done?
Over the last 20 years we have led the way by:
Raising awareness of the plight of children with brain tumours by contributing to lobbying in Parliament in UK and Europe.
https://petition.parliament.uk/petitions/105560; https://jtvcancersupport.com/2011/08/not-everyone-is-as-lucky-as-me/.
Initiating, launching and managing the HeadSmart Early Diagnosis of Brain Tumours awareness campaign (www.headsmart.org.uk), to accelerate diagnosis of brain tumours for children
Harnessing the scientific expertise in genetics, biology, drug development and delivery, imaging and clinical trials to tackle the commonest and most challenging brain tumour types that affect children.
http://www.cbtrc.org;
http://www.cbtddc.org/cbtdd-consortium.aspx
What are we doing now?
We are now developing a growing programme of research, training the leaders of tomorrow, building on these foundations to introduce ways to avoid the harm of brain tumours and save more children's lives.
So, why cycle from Bridlington to Morecambe or Inverness to Glasgow?
Well, in 2010 our Vice Chancellor, Sir David Greenaway, suggested that we cycle 1100 miles from John 'O Groats to Lands End to raise awareness for palliative care research. I joined the ride and we raised awareness and money to transform research.
In 2014, he suggested we cycle1400 miles to the 4 corners of Great Britain for CBTRC. I had to join that ride, we raised over £750,000 and transformed CBTRC to a major research centre in the School of Medicine.
He has said this year we do two rides for CBTRC, from East to West across England and from North to South through the middle of Scotland, as well as a number of other events through the year.
I will take part in them all and we will work with our supporters to transform this awareness of brain tumours into research action, training future clinical and scientific leaders to improve outcomes for children experiencing brain tumours, and their families.
Please do two things:
Tell people about the 20th anniversary of CBTRC, ask them to announce the good news and if they feel we are doing the right thing, then perhaps they can support the cause, one way or another.
Our strongest weapon against this disease is the firm belief that enhanced research will be achieved by enhanced awareness, which will mean that we can not only save more children's lives but also reduce the life-long harm they currently experience.
We value any support you can offer.