Thanks for taking the time to visit my JustGiving page. Any donation is greatly appreciated.

I met Jarrod, Stacey, Trevor and Chris through White Collar Boxing. Inspired by Trevor and I completing 2 half marathons with Georgia they have put a team together to take part in the Midlands Tough Mudder on May 18th at Belvoir Castle. 

Georgia was diagnosed with Rett Syndrome at the age of 3. Rett Syndrome is a neurological genetic disorder predominately effecting girls (1 in 10,000). Typically girls will develop normally until the age of 18 - 24 months, they then go through a regression phase losing skills they have gained. Georgia can not walk, talk or use her hands. In November she developed epilepsy causing several admissions to hospital. She has regular checks on her spine as scoliosis is common and currently has a mild curve at the top of her spine. Other symptoms include breathing difficulties, cardiac problems, difficulty eating and drinking. She is trapped in a body which the brain can't control. Reverse Rett as a charity raise money to fund research into a cure for Rett Syndrome and treatments for symptoms. Reverse Rett have funded a clinical trial at Kings College London for the first drug specifically designed for treating respiratory problems in people with Rett Syndrome. They are also working with a consortium of researchers working on a cure for Rett Syndrome. The first gene therapy clinical trial for Rett Syndrome is due to start in 2019. This potentially would be a cure for Rett Syndrome. Research into Rett Syndrome receives no government funding and therefore relies on money through fundraising mainly by parents, family and friends of those who have Rett Syndrome. Every penny counts and Reverse Rett pride themselves on over 90% of money raised going directly into research.

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