David's Commando Series 2018 - Hever Castle page

David Hooker is raising money for CDKL5 UK
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Commando Series 2018 - Hever Castle · 10 November 2018

CDKL5 deficiency disorder is a rare condition which manifests in the first few months of life with rare and complex epilepsy. Children and adults with CDKL5 require life long support. CDKL5 UK aims to support families through direct support and patient advocacy. #Togetherwearestronger

Story

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So it just appeared on my Facebook page that a friend was taking part in this event in November and I called her “bonkers”.....24 hours later I’ve signed up! So seeing as I’m doing it, I may as well do it for a cause.
One of my old school friends has a daughter with CDKL5 disorder, something that means she requires constant care. I don’t know too much about it I’m afraid, so obviously awareness needs to be raised, and more money is needed to research into this condition.

To learn more click here https://www.curecdkl5.org/what-is-cdkl5/what-is-cdkl5-2/what-is-cdkl5-disorder/

Come on give a few quid to help me survive this “bonkers” decision I’ve made!

See the event here https://commandoseries.co.uk/

Donation summary

Total
£345.00
+ £67.50 Gift Aid
Online
£345.00
Offline
£0.00

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