So here we are again.

After running with my brother in law Jonathan Pearce for the past two years - we had planned to run together once more - but unfortunately JP has had to withdraw from the marathon due to injury.  So I am going it alone, well not quite alone as we have 17 runners supporting The Lily Foundation this year a huge achievement for us!

Most of you will know about Lily and The Lily Foundation and some of you will know just how much we have achieved.

Lily was my third daughter and lost her short little life to a mitochondrial disease.  She died aged 8 months old after being told at 7 weeks old that she had just days to live.  These extra six months were very precious and we have some treasured moments.  Possibly most importantly we have some happy memories to share with Lily's sisters Katie and Rosie when they ask us questions about their little sister.  Memories that got me through a 50 mile run last year and will get me through this marathon!

After Lily died with Jonathan's help we set up the Lily Foundation.  We have three main aims; to fund a gene testing programme - we have donated £158,000 to this cause to date.  To support the training of doctors and nurses  - we have donated £12,000 to this cause to date and to to support the Ronald McDonald Trust - we have donated £3000. The past two years have been amazing, we have seen the charity grow from strength to strength.  With the money we have presented to date the chip technology required for the gene testing programme has been designed and trials are now in place.  This will enable doctors to diagnose mitochondrial disease faster and help families already affected to plan for a future as it will make pre-natal testing a possibility.

To find out more about The Lily Foundation please visit our website www.thelilyfoundation.org.uk

I know I have asked before, but please sponsor me - the money you help us to raise year on year really does make a difference.

Thanks x

PS Pearcy i will really miss running with you this year - especially your sprint finish!!!

 

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