Dasha G

Dasha's page

Fundraising for The Fragile X Society
£545
raised of £262 target
Donations cannot currently be made to this page
Event: London Marathon 2022, on 2 October 2022
The Fragile X Society

Verified by JustGiving

RCN 1127861
We provide information & encourage research to support people affected by fragile X

Story

Thank you for taking the time to visit my JustGiving page.

My biggest dream over the past 15 years was to run London Marathon.
I was given this opportunity and my dream will come true on 2nd October 2022.

Now it’s time to raise awareness of Fragile X Syndrome and money
for Fragile x Society.

Fragile X Syndrome (FXS) is a genetic condition, affecting around 1 in 4000 males and 1 in 6000 females. It can cause a wide range of difficulties with learning, as well as social, language, attentional, emotional, and behavioural problems. In addition, approximately in 1 in 250 females and 1 in 600 males are carriers of the Fragile X pre-mutation and may develop symptoms of a Fragile X Premutation Associated Condition (FXPAC) such as FXTAS and FXPOI. Therefore, Fragile X consists of a family of genetic conditions.  

The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to families and professionals they work with. Working together with those affected, the Society supports an inclusive community of people who understand the specific needs of Fragile X.

For more information visit  https://www.fragilex.org.uk

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About the charity

The Fragile X Society

Verified by JustGiving

RCN 1127861
The Fragile X Society is the only charity dedicated to individuals and families living with Fragile X syndrome - the most common cause of inherited learning disability. We are continually working to improve the quality of life for all people impacted by Fragile X.

Donation summary

Total raised
£545.00
+ £126.25 Gift Aid
Online donations
£525.00
Offline donations
£20.00

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